Decemburns

It’s been two weeks since my last post – and that’s bad – but it’s for a good reason.

On a bit of a whim, I started ‘Decemburns’ on World AIDS Day. http://www.decemburns.org/

We’re growing sideburns to raise money for the Stephen Lewis Foundation for the entire month of December. Please join us, or donate, or at least help to spread the word!

It’s been keeping me quite busy. I had a radio interview yesterday, the SLF has been in touch re: more promotion, and I’m still plugging through this paper on HIV policies in Brazil (curse you coursework!)

Anyways, I’m hoping to get back to my desired couple of times a week routine once this madness has faded a bit, but for now, you can follow the development of the campaign at: http://www.decemburns.org/ – so far we’re over $1600!

HIV Prevalence Estimates & Decemburns

HIV Prevalence Estimates

Kim Yi Dionne was kind enough to respond to my question regarding why she was skeptical about the UN’s latest data (reports that infections are down 17% in sub-Saharan Africa).

I wasn’t surprised that it was a concern over measurement, and especially over the ability to compare data over time. (Read Kim’s post here). The data is … questionable. But I guess my point is that all UN data is problematic, and the estimates are nothing more than that.

From my perspective, there is something else going on with the data – and it’s political. I already spoke a little about this, but what is of particular interest is the fact that we know that data is never perfect – so there is always some kind of bias present. So the interesting question (to me) is why didn’t the UN over or under report? Or why did they?

Of course, such questions are simply academic. At the end of the day, what matters is what the data allows us to do. Kim says “that I’m no longer convinced that population-based testing will provide us HIV prevalence estimates we can be confident about.” My question back would be “how confident do we have to be, and why?” The data is always skewed, and by its nature it will always misrepresent reality. So what do we do with that?

I think the answer lies somewhere in the recognition that the data is never perfect, and any representation of the data is necessarily normative. Case in point, take a look at a Mercator Projection of the world, and then look at the Peters Projection. They’re both “right,” depending on your criteria. Politics and normative positions literally (in this case at list) shape how we see the world.

So I guess my pitch is this: when we look at data, we need to be cognizant of what we want to do with the data. And better – we should be cognizant of what others want to do with the data. I can use the UN data to argue for an increase in aid for SSA AIDS programs, or for a decrease. For more attention, or less. I can use it to criticize the UN for its past failures, or to compliment it for admitting its mistake. I want to know what the politics and ideology of the person working with the data is ahead of time – objectivity through transparency? I don’t know. Maybe just Gonzo academia.

Decemburns

In a moment of severely low caffeine levels, I thought that it would be a good idea to capitalize on the success of recent facial-hair related charity months (cf. Movember) and start one that brings attention to HIV/AIDS in sub-Saharan Africa. So I have recruited a few of my friends to grow “Decemburns” for the Stephen Lewis Foundation.

Not only will this raise some money, but I’m hoping that it will generate some amazing family holiday photographs. All of this will be posted on the website, Decemburns.org when it launches later this week. More news and “before” photos to follow.

So which is it? Both, probably.

South Africa’s life expectancy has plummeted due to HIV/AIDS, but the UN has just released a report claiming that HIV infections have dropped by 17% in sub-Saharan Africa.

Yes, I know they are not the same places, nor are they the same measures, but they are saying diametrically opposed things. Things are getting better, or things are getting worse.

The UN report (and these are my cursory observations, I haven’t had a chance to read through the entire report yet) claims that in addition to the natural trajectory of the epidemic, programs are making a difference. But it also highlights the fact that much better work needs to be done in order to figure out what is working, where and why.

There’s also the question of measurement. Anyone familiar with Pisani’s ‘Wisdom of Whores’ is familiar with the number cooking that occurs in the HIV/AIDS world. It’s not necessarily a bad thing – we need to extrapolate in order to assess – but it means we often make mistakes. Case in point was the UN’s move in 2007 to revise downwards the number of global AIDS cases by 6 million. Poof! Success through statistics!

I’m not judging – nothing gets done with out estimates – and kudos for the revision. All I’m saying is that a 17% reduction of new infections may very well be the result of better measuring – and this is a very good thing, but for very different reasons.

Measurement is, I think the key problem to a lot of the HIV puzzle. Life-expectancy can go down in South Africa due to deaths from AIDS while new infections go down. They are different sides to the problem, both important, but necessarily and conceptually distinct. Getting someone tested, getting them to use a condom or to stop engaging in multiple partnerships is a much different problem than getting ARVs to people and making sure they take them consistently.

End of the day – this blog post should have been written after I read the report, but I think that sometimes there’s value to first impressions – especially if they coincide with a free 20 minutes…

WFEI Launch & HIV in the news

I didn’t see much coverage about the fact that it was World AIDS week, but there did seem to a spike in the amount of coverage. At any rate, due to a run in with one Sir Thomas Hobbes of Malmesbury, the WFEI website launch (a global index for work, family and equity measures), and a trip today to our nation’s capital, my week was pretty much shot.

So here’s some interesting stuff this week:

Responsibility
I never thought I’d see this happen, but Jacob Zuma’s Health Minister, Dr. Aaron Motsoaledi, announced on November 13th that the AIDS denialism that permeated Mbeki’s government was responsible for a huge spike in deaths. How huge? From 2007 to 2008, deaths in South Africa increased by 182,654.
Article via Health-E News

Irresponsibility
Stephen Harper, and the leaders of the other G8 countries have failed to meet their commitments to
Read more about their failings via International AIDS Society

Work, Family and Equity Index
I’m a doctoral fellow at the McGill Institute for Health and Social Policy, and we like to do big data projects. Global policy stuff. Maps. We like the maps. So I’m pleased to announce that after much toiling, frustration and coffee, our team has launched the site in conjunction with Prof. Jody Heymann’s new book, Raising the Global Floor.

I left computer programming for a reason, and building this site reminded me why (it also reminded me why I used to love it so much, but we’ll downplay that part so I don’t have to do this again…). But I’m quite proud to be a part of a project that demonstrates that countries which provide things like sick leave, parental leave and other protections for workers are not economically penalized – in fact they tend to do better. All the data is now online, and I do hope that highlighting a country’s policies in relation to their peers helps to change these policies for the better.

WFEI Index

Fear
Uganda is revamping its prevention strategy in recognition of rising infection rates, in particular they are considering making the messaging more general and, to a certain extent, more frightening:

“We have to change the destiny of this country, even if it means putting back the drums of the 1980s that used to frighten people,” said UAC director-general, David Kihumuro Apuuli.

Current research suggests that this might not be a good idea. Fear leads to stigma, stigma is considered universally bad. However, stigma requires an established norm – if the norm is appropriate to HIV prevention, and the stigmatization occurs against those who are irresponsible about their sexual encounters, then this is a good thing. Some good political theory work on stigma has been done in this direction, and it’s worth taking seriously.
Article via PlusNews

Football
Next year’s World Cup in South Africa is an unprecedented opportunity to reach the public of not only South Africa, but a good chunk of the continent. I’m heartened to see that FIFA, civil society and government appear to be working together towards this. My only complaint is that this wasn’t done sooner.

This has also eased fears of mine that the South African government would downplay or ignore the epidemic, at the detriment of everyone. Given South Africa’s (overblown, on my experience) reputation for crime, mix in an HIV epidemic, and all of a sudden you have a real fear that tourists will stay home. Kudos to the government for tackling this head on.
Article via PlusNews

World AIDS Week

This is world AIDS week, and there are some notable events occurring at McGill. I’m particularly excited about the discussion of the criminalization of HIV on Thursday, but time permitting I will be at all of these events. The events are co-ordinated by the McGill Global AIDS Coalition.

 

Film Screening of Triage, presented by Richard Zereik (MSF)
Monday, November 16, 6:30 pm – 9:00 pm; Leacock 219

 

Panel Discussion: HIV in the Montreal Community
Tuesday, November 17, 6:30 pm – 9:00 pm; Bronfman 151

  • Dr. Bluma Brenner (Researcher, Jewish General Hospital AIDS Centre)
  • Mark Hapanowicz (Executive Director of ACCM)
  • Jean-Francois Mary (Client Representative of CACTUS Montreal)
  •  

    Panel Discussion: The Criminalization of HIV/AIDS
    Wednesday, November 18, 6:30 pm – 9:00 pm; Adams Auditorium

  • Dr. Mark Wainberg (Director, McGill AIDS Centre)
  • Alana Klein (Faculty of Law, McGill)
  • Dr. Norbert Gilmore (Senior Physician, MUHC)
  •  

    Music and Movement, Variety Show
    Thursday, November 19, 9:30 pm – 11:00 pm; SSMU Ballroom
    Tickets: $5

     

    Keynote Address by Donna Barry (Advocacy and Policy Director, Partners in Health) – HIV/AIDS: Treating the Whole Person
    Friday, November 20, 6:00 pm – 7:30 pm; Strathcona M-1

     

    I’ll post some of my impressions of the events as the week progresses.

    Brothers for Life

    In July and August of this year I was lucky enough to be stationed in Durban. One of the more interesting things that I saw when I was there was the Brothers for Life campaign.  I’ve got to say, for all the criticism that can be (justifiably) lobbed at previous South African governments in regards to HIV, credit needs to be given where credit is due.

    The campaign focuses on the need for South African’s men to take responsibility for their role in the epidemic, to create a new ideal of what ‘masculine’ is.  Of course, this won’t solve everything – contrary to popular belief, a large percentage of married HIV-discordant couples consist of a positive woman and a negative man, meaning that HIV is not entering the relationship via the irresponsibility of the man – but it is a wonderful start.

    Behaviour change programs, such as the widely lauded ABC (Abstinence, Be Faithful, Condomise) program in Uganda are great at telling people what they should do, but not very good at giving them compelling reasons to do it.  Knowledge of HIV prevention in South Africa is quite high, but people continue to engage in risky behaviour.  Even in the model case of Uganda, recent numbers suggest that even with high levels of knowledge, individuals have begun to once again engage in behaviour that they know is risky.

    There are many reasons for this – expectations, norms, stigma – and these reasons all share a common dimension – belief.   People know one thing, but believe another.  (i.e. Yes, I know that condoms can prevent HIV, but if I insist on one, my partner will think that I have been unfaithful.) At the end of the day knowledge does not necessarily produce action (or at least action is not always based on knowledge).  For proof of this, talk to anybody who has been in a relationship.

    The point is that HIV prevention campaigns need to look beyond information.  They need to address how people process that information, and that means understanding the realities of the social context in which the messages are given.  Brothers for Life is a great example of this, and I hope it continues to make the news for the right reasons.

    Check out the Brothers for Life TV and Radio spots here.

    ** In other related news, a new television campaign put out by Brothers for Life specifically targets  the deaf. People living with disabilities are at disproportionately high levels of risk of HIV infection for a whole host of reasons.  That a national campaign is addressing and engaging with this reality is promising. (For more information on HIV and disability, take a look at some of the work of Jill Hanass-Hancock at HEARD.)

    Is vs. Ought

    I just read in the NY Times that a bill is creeping its way through Congress that would prohibit needle exchanges from being within 1,000 feet of anywhere that children might gather.  Of course, if it passes it will means that the only place where an American needle exchange program will be allowed is in Canada.  Such policies are, for lack of a better word, silly.  If needles aren’t exchanged, they end up on the street, in the parks, and in many other places where children might gather.  Safe needle injection sites make sure that injection drug users don’t acquire HIV, Hepatitis or other blood-borne diseases.  They also provide counselling and the support and resources needed for those who wish to quit.  And this is I expect the response that will be heard throughout the media.

    But of course, politics is never about good policy, which is what makes political theory so interesting to me.  At issue here is rather the question of tacit support for what is to some a morally questionable activity.  How can someone be morally consistent if they fund safe injection sites while holding the belief that drugs are evil? Or buy condoms for teenagers while believing that sex before marriage is wrong?

    I think there are at least two important things going on.  The first is the assumption that ought actually is.  If x is bad, and person y does x, then clearly y is a bad person.  This is, of course, patently false, but that doesn’t prevent it from being relevant.

    The second is that there is an assumption that the desired objective of public policy is universal.  Policy wonks, parents and politicians all want the piece of policy to do different things – and they’re not always compatible. A politician will never support a piece of ineffective legislation, but we’re naive if we believe that ‘effective’ means ‘does what it is meant to.’

    The first assumption makes problems easy to ignore. The second makes them difficult to address effectively if they do get the right amount of attention.  The point of politics is to figure out how to overcome these hurdles.

    So yes, my two cents for what it’s worth. Whenever issues like this hit the news, the response is overwhelmingly to cry foul over the fact that lawmakers are stifling good policies that work.  Yes. Knowing what to do and how to do it is almost never the problem.  Knowing how to motivate and frame and get around the intrinsic barriers, that’s the interesting and complicated part.

    As way of example, take a look at PEPFAR.  The United States government could have cared less about the Global AIDS epidemic until George W. Bush heard a piece of information that changed everything: it wasn’t just homosexuals and drug addicts getting infected in Africa, in fact most of the people were innocent wives and children. I stress ‘the innocent’ for my own amusement, as if it makes any sense to accuse men who have sex with men or injection drug users as ‘guilty’.  But it worked. Negligence of the ‘bad people’ turned swiftly into compassion for the ‘innocent.’  It’s just a question of framing.

    In the case of PEPFAR, Bush was in a unique position to turn his compassion into action.  Of course, the tenets of PEPFAR (i.e. that 30% of the money must be spent on abstinence only programming, and that programs could not approve of prostitution) were laden with restrictions that made the policies ‘ineffective’ by the standards of most AIDS activists. The truth is though, that Bush’s objective was to protect who he deemed the innocent and PEPFAR does that quite well.  It helps most those who are not engaged in what Bush finds morally reprehensible.  Very effective, just not necessarily at the population level.

    Getting policy to work is a creative process, it’s less about what works, and more about understanding structure, influence, personal desires and the prejudices of the populace.  It’s about framing the issue in such a way that your objective meshes with everyone else’s.  It’s a process of building what Rawls would call an overlapping consensus, an agreement about the objective without necessarily an agreement for reasons for wanting it.

    I think that’s neat. And it explains why responding to “bad policy decisions” with facts and statistics is often ineffective. Better would be to stress the fact that some injection drug users want to quit, but don’t have the support. That not all injection drug users become ‘junkies,’ some experiment a few times and go back to a normal life. And of course, that each person who uses these clinics, and each person who doesn’t, is somebody’s child.

    It’s always easier to rally to support the innocent, and it’s definitely more politically difficult to object to.

    And this is how it goes…

    I’ve been blogging on and off for a few years now, but I’ve decided to start afresh with an eye to consistency and relevance.  I hope I can live up to those two modest objectives.